Saturday, September 5, 2009
Old fun pictures
JOSH RETURNS TO WEST CITY CAMPUS ABI PROGRAM
Josh and his teacher, Zack
Due to massive budget cuts by the state of California, the ABI (Acquired Brain Injury) program was furloughed for nearly two months. The good news is that the program is starting up again on Tuesday and Josh will start attending once again. The State of California is in a major fiscal crisis. They have cut programs left and right, have closed post offices and DMVs (Department of Motor Vehicles) and have laid off thousands of state workers. State funded programs for the disabled have been hit extremely hard. Luckily, the ABI was not totally cut from the budget, but was furloughed for nearly two months. I did manage to keep in touch with Josh's teachers, Joanne and Julie, during the summer and am happy and thankful that they will be returning come Tuesday, September 8. I need to take a picture of Josh with Joanne, his other ABI teacher and post it on the blog. Joanne has a background in psychology. She is animated, dedicated to her students and fun.
Josh will be attending three days a week or more. The good thing about the ABI program is its flexibility. You can attend as little or as much as you want. It is there for you every single day.
Friday, May 22, 2009
It's been a while....
It's been a while since I have updated the blog. I was waiting for some new and exciting news to share with everyone about Josh's progress. Well, it's not exactly a monumental breakthrough, but it is PROGRESS -- Josh has started the ABI (Acquired Brain Injury) Program at West City Campus in Point Loma and is actually attending classes daily from 9 to noon. He's in a real classroom with great instructors who are totally and completely dedicated to the brain injured -- trues heroes. The ABI program provides guidance to those with brain injuries in areas of self-awareness, social skills, cognitive skills training in areas of memory, problem-solving, organization and time management.
Josh has been so sheltered since the brain injury. All of his therapies have been one on one. It's time to branch out and be in a social setting like a college!!! I was a complete train wreck the first day Josh attended, but Zack was with him and Josh did amazingly well! The first day everyone introduced themselves to Josh and explained what had happened to them -- one by one each person told their pitifully, sad, heart-wrenching story. They would say something like, "Hi Josh, my name is Susan and I was in a terrible car wreck... Hi Josh, is that your name? I have trouble remembering names...forgive me... I had an aneurysm... Hi Josh, welcome to the class, my name is Peter and I had an overdose... Hi Josh, I had a stroke... Hi Josh, my brain was hurt at work... " Josh was silent and totally appropriate. He listened. He did not laugh when someone slurred their speech. He was taking it all in... I, on the other hand, was holding my breath so I wouldn't burst into tears at any moment. It was so hard to listen to their stories. The worst story of all was told by a gentleman who was strapped in his wheelchair with nearly unintelligible, slurred speech... he explained that he went in for surgery and "the doctor made a boo boo." He went to the hospital for some kind of ear operation and ended up with a horrible stroke, which messed up his equilibrium and the right side of his body including his eye... I nearly lost it when I heard his story. How sad and unfair!!
The great thing about the ABI program is that the program allows the instructors to tailor their lessons to the individual challenges of each student. It is small and personal. The students are encouraged to mingle and interact with one another. During the break, Josh went over to a bunch of guys who were playing dominoes and joined in. Zack called me at work to tell me that Josh showed the class how to log onto Facebook. He remembered his new password, logged on and the class applauded him!
Mike Jones, Josh's tutor, had been gearing Josh up for his big debut at the ABI Program. He discussed the program with Josh everyday for about a week prior to him starting the program. He helped Josh with all the paperwork and wrote the dates and times Josh would be attending in his planner. Mike is awesome. That's Mike in the picture at the start of this blog entry.
Natalie is home from college. She had a great first year at Boulder and will be living in an apartment when she returns in the fall. Natalie and I are going to Maui June 3rd and can't wait! I think Josh will soon be traveling with us. I don't want to do a 6 hour flight to start off -- maybe a trip to Chicago. Family, friends, please come visit us! We miss you all !
I have one other thing to tell you all - Josh came with me to a "Gambling Gourmet" party - a bunch of my girlfriends get together once a month at somebody's house and we eat, drink, laugh a great deal and play cards! Well, guess who won all the money -- yeah, you guessed it -- JOSH!! He was a riot. He remembered all the wild cards in each game that we played and kept trying to up the ante. In one game, I kept telling Josh to fold... he held on and his last card was the 5 of hearts for a FULL HOUSE! He took all the money and said, "Mom, let's go. Thank you, Ladies, it's been a pleasure!"
Saturday, February 14, 2009
A few weeks ago while having breakfast the radio was on and John Mayer's tune "Daughters" was playing. Josh and I were singing along with the tune and I sang "Girls become lovers that turn into ____, looking to Josh to fill in the blank and he blurts out "Beasts". It was hysterical. Josh said, "That's what happens, Mom, they turn into beasts!" He's so funny... Josh may have lost his mind, but he hasn't lost his sense of humor. He makes me laugh a lot!
While driving one day, Josh was annoying me with all his persistent and constant questioning about this and that. He looks at me and says, "How old am I?" I said, "Josh, you know how old you are...why do you ask questions that you know the answers to?", and Josh says, "I am insecure." He's so cute... I said, "Are you confused because of the brain injury or insecure?" He says, "I guess I am confused...."
Josh is also doing FeldenKrais Yoga !
Thursday, January 22, 2009
We survived the holidays.

Christmas 2008
Joshy and Brittany, December 2008
Saturday, October 18, 2008
Josh has a new blog...
Saturday, August 2, 2008
Josh has a new team of educators and is improving...
Natalie turned 18 on July 22, 2008. We had a party at Rock Bottom with lots of her friends.
Natalie's graduation from Canyon Crest Academy, June 12, 2008
US Open cake from Four Seasons Aviara.
Picture of Josh and me taken on August 2, 2008, by Vin. Please excuse the shirt...Josh's ex-girlfriend, Brittany, bought it for him a few years ago. He insisted on wearing it to HBOT. He's still happy and smiling away...
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It's been a little over two months since I have updated the blog. Since then, I have been to South Beach Miami for a bachelorette party and to Boulder for Natalie's orientation at University of Colorado. Natalie has signed up for all her classes, is in the leadership program and will start college on August 25. We fly there on the 21st to get all moved in....
Oh yeah....this blog is about Josh! Well, let's see...I guess he's coming along. It's hard to measure his progress since I see him everyday... Josh's memory is getting better. He remembers that Mike, Angie and Tyler were here for Natalie's graduation ! That is big. It seems that his memory for big events is fairly decent at times, but the small stuff like what he had for breakfast and what he did the day before is spotty... Dr. B explained that this is how the memory comes back, first the big stuff, then the small stuff...
Josh continues to perseverate about Jerry and college and now my mother.... Josh will call me at work in the middle of the afternoon and ask, "Where's your mother?" very strange... and totally annoying... He is also into this thing where he asks, "Who died first Grandma or Dad.... what about Armen??? did he go to heaven or hell??? (then he just laughs like there is no tomorrow..crazy Joshy.) what about Hector??? is he still alive???" Every night Josh will look at family pictures and ask where they all are... The other night Josh asked about Myron! He said, "Mom, is Myron still around?" The other day Josh was reading Uncle Charlie's obituary and started on him... "Where is he?" Dr. B thinks that Josh is literally asking where they are. If we are in the car and I remind Josh to put hisseatbelt on, he'll say, "I am not putting it on...I want to be with Dad.." Then he just laughs.... The other day Josh was yelling at Vin and I said, "Josh, why are you screaming?" Josh says, "Because Vin didn't know Jerry." Then he'll laugh. He asks everyone "Did you know my Dad?" This is that lack of executive function thing where he just blurts out stupid stuff or laughs inappropriately if he sees someone fall. If I bring Josh to Reliable Pipe, he'll walk up to the customers and say "What's your name?" He constantly looks at Mike Nunez and asks him, "Where's Hector? Is he with my Dad?"
Josh does well when he is engaged in some kind of activity and has an amazing concentration level considering what happened to him. Four days a week he has four hours of one on one therapy, two in the morning at Encinitas Learning Center in his advanced neuroplasticity program and then two hours in the afternoon with his tutor. He can do algebra and complex averages... He is doing very well and Mike Jones is quite pleased with his progress and loves working with Josh. Yesterday Mike called me at work after their tutoring session and told me that Josh remembered his middle name which Mike told him last month....the memory thing is quite bizarre and spotty...some things he stores away and remembers and other things he immediately forgets... When Josh is perseverating about Jerry or college, he won't remember anything you tell him or anything that is happening around him... He is in the "crazy Josh world" trying to sort things out... It is like a broken record that is stuck in the groove... the therapists say to touch him to ground him to reality... IT IS MADDENING AND DIFFICULT!!
The "When am I going back to college?" thing is continuing. Josh constantly asks me this and when he does I no longer say "soon". Dr. B says you must tell him that he'll go back when his brain heals, that he needs to work hard atall his therapies so his memory and reasoning ability will come back. I have something written out which explains that he suffered from a near death brain injury which caused cell death in his brain when he had no oxygen... Josh understands sometimes. If you tell him that he'll go back to college "if your brain heals", he has a fit. He'll scream, "What do you mean IF????"
I decided that I wanted happy, motivated professionals around Josh so I got rid of Nino, his driver, and put an ad in Craig's list for an educator to drive Josh to Encinitas Learning Center and to work with the therapists there to understand what is happening and reinforce those exercises at home. The ad stated that the educator must play xbox, pool, cards, ping pong and golf, and most importantly have a sense of humor. I want fun people around Josh, not boring caregivers that don't give a shit. I also stated in the ad that a telephone interview was required and gave my cell phone number. I probably received 50 calls from retired and laid off teachers. I hired two young guys, Zach and Zodi. Zach has a degree in special education and is a substitute teacher. He has a great personality, is fun, full of great ideas and is very enthusiastic. He is also darling, 6 foot, blonde and blue and married to a gal who works in the pharmaceutical industry. Zodi has a teaching degree from San Diego State in kinesthesiology. He is fun, animated, extremely polite and humble! I got so many qualified people that my head was spinning. I decided to break up the week, three days for Zach and two days for Zodi. So far, so good. Before I was not ready to interview people and tell them exactly what I wanted. I was too emotional so I just called agencies and said, "Send me people." I think Josh will make better progress with fun people around him. If they get burnt out, I'll hire other fun people.
Josh's latest thing is watching movies. He loves to laugh. He'll focus on an entire movie. If I walk in the room, he'll get distracted and start with the crazy questions. A few days ago, Josh walked in my bedroom around 6:30 a.m. with the Cheech and Chong DVD. He'll get up really early and read all his notes on the kitchen table. I'll hear him mulling around in the kitchen.
I have more to tell, but it's 20 minutes until 11 andI have a golf date at 11:30 and haven't showered yet...so I'll finish up when I get back and attach some photos of Natalie's bday and graduation.... I am dating now and having fun!! Stay tuned.....
xoxoxo
Oh yeah, I forgot to mention that Josh is still going to HBOT but only once a week and at a deeper depth, 2.0 atmospheres. He loves it! As he becomes more and more cognitive, I think we will go deeper. It helps with stiffness. Josh has blisters on his hands from gripping the golf club so tightly. He needs to loosen up. We're laying off of golf for a while and doing frisbee golf which is great exercise.